my dad died from ALS when i was 3 years old. he was 36. my mom was 33. that was 30 years ago. now i’m the same age my mom was when my dad died. and there is still no cure for ALS.
this is what happens when you have ALS: your muscles slowly stop working, one part at a time. for my dad, first he couldn’t use one of his hands. then his arm. then the other arm. then he couldn’t walk. then he couldn’t stand up. then he couldn’t talk. then he couldn’t swallow. then he couldn’t breathe. then he was dead.
this all took about two years. he was diagnosed when i was about one year old. the only memories i have about my dad are of an inert body in a wheelchair or lying in a bed with a bunch of tubes stuck into it. as i was learning to talk, he was losing the ability to speak. as i was learning to walk, he stopped being able to move. my mom often had to choose between who she was going to help go to the bathroom at any given moment: her husband or her toddler.
after my dad died, my mom took over the philadelphia chapter of the ALS association. it consisted of a shoebox full of notecards with names on it. now it is a multi-million dollar organization with a large staff. she is still in charge. my mom is one of the most amazing people on the planet, basically.
these past couple weeks have been mind-boggling. i have openly wept watching so many of these videos. i still don’t completely get how all of this has happened, but now we live in a world in which lil wayne and taylor swift and oprah and justin timberlake and weird al and bill gates talk about ALS. my mom just emailed me this sentence: “lebron james ice bucket challenge.” i mean, IS THIS REAL LIFE?! i just keep saying over and over: holy shit. holy shit. holy shit.
so far, it has raised over 10 million dollars… and counting. my mom has spent every single day of her life for the past three decades trying to get this kind of attention and funds for this disease.
i don’t care if it’s a stupid gimmick. i don’t care if people are just doing this because it’s trendy or because they want pats on the back. i don’t care if it’s the new harlem shake. i don’t care if for the rest of my life, when i talk about ALS, i have to say “you know, the ice bucket disease.”
please, everybody, please keep pouring buckets of ice over your heads. please keep donating money. please keep talking about this.
my mom’s chapter:
p.s. the only reason i haven’t done my own ice bucket challenge yet is because i wanted to do it with my mom. we’re seeing each other next week, so it will happen then, i promise.
Think about this next time you think it’s just a stupid gimick
i did a thing.
I was on Quotev and I got this ad and I just
haha its a little arrow! hey there little guy!
where are you going, silly? down isn’t the way to live! you have to have a positive outlook! always look up!
yeah!! that’s more like it. keep heading towards the sky, little buddy. i believe in you
there’s a huge problem in gaming today where people are focusing more on graphics than aethestic, which is really shitty because it leads to all of these awful derivative modern military shooters and games that have no identity. like i don’t really care if you’re able to render the 374th bead of sweat on a grizzled marine’s face, if you don’t have a unique style nobody will remember your game
I present to you, a rat in a hat. #rat #hat #cute #ratsofinstagram #adorable #petrat
Some signs exist because theyre practical Others have a hell of a story behind them
How awesome does this sound though. You get infinite money and once a week you get to take a child to a candy store or toys or us or somewhere they love and buy them as much they want this would be fun given the kid wasn’t a brat.
There is no downside to this at all
This is the best, because it says A CHILD, not your child, so I could pick one of the really poor kids on the streets and go “Your life is going to change right now”, and I could buy everything their family might need, along with a house, a food supply, toys, clothes, and everything they never had the chance to have before. And the best thing is that I could do this with lots of children, and not just one. I could give a lot of children in need a full week of Christmas basically and maybe give them a chance to have a different life. That would be great.
Bless u ^ humanity still exists.
Plus depending on how you define “child”, you could be helping high students who struggling with application fines and even pay for college tuition, room and board, or books